How to use patient feedback more effectively to improve services

"These presentations are from the King's Fund one-day event, which looked at information currently collected from patient surveys. It explored the key messages that can be drawn from the data and looked at how health care professionals can use these messages to drive service improvement."

How to use patient feedback more effectively to improve services
The King's Fund
April 2016

View the presentations here.

Collective intelligence in patient organisations

"By inputting environmental or clinical data, mapping territories, discussing and voting, coding and writing, citizens can contribute their knowledge and ideas to data collection tasks, analysis and public debates."

Collective intelligence in patient organisations
L Nicholas, S Broadbent
Nesta
July 2015

Read more here.

Individual care plans for chronically ill patients within primary care in the Netherlands

"We conclude that individual care plan (ICP) use among chronically ill patients within primary care in the Netherlands is low, even among diagnostic groups for which a nationwide disease-management approach was adopted. This implies that there is a gap between practice and policy aspirations to implement ICPs in primary chronic illness care."

Individual care plans for chronically ill patients within primary care in the Netherlands: Dissemination and associations with patient characteristics and patient-perceived quality of care
DL Jansen, M Heijmans, M Rijken
Scandinavian Journal of Primary Care: 2015

Read more here.

Spotlight on patient centred care

"This spotlight series of articles on patient centred care explores how doctors and patients can work collaboratively to improve the way healthcare is designed and delivered so that it better meets the needs and priorities of patients."

Spotlight on patient centred care
British Medical Journal
February 2015

Read more here.

Public participation in health-related research decisions: Views of funding bodies

"For research to have its maximum impact when translated into healthcare, health policies and health technologies, there needs to be sensitivity towards multiple frames of knowledge, expertise and underlying values that exist across science and society."

UK research funding bodies’ views towards public participation in health-related research decisions: an exploratory study
JE van Bekkum, S Hilton
BMC Health Services Research, 2014, 14:318

Read more here.

Rethinking the patient

"Burden of Treatment Theory is a structural model that focuses on the work that patients and their networks do. It thus helps us understand variations in healthcare utilization and adherence in different healthcare settings and clinical contexts."

Rethinking the patient: Using Burden of Treatment Theory to understand the changing dynamics of illness
CR May, et al.
BMC Health Services Research, 2014, 14:281

Read more here.

Supporting people to manage their health

"Patient activation is a unique concept that captures a patient’s knowledge, skills and confidence in managing their health and health care and the likelihood that they will put these into action."

Supporting people to manage their health: an introduction to patient activation
J Hibbard, H Gilburt
The King's Fund
May 2014

Read more here.

Patient empowerment: for better quality, more sustainable health services globally

"This report highlights some of the lessons and examples from this increasingly global patient empowerment movement. The primary focus is on the role of individuals in their own healthcare, although overlap with the equally important issues of public involvement in health and empowerment in social care are recognised."

Patient empowerment: for better quality, more sustainable health services globally
All Party Parliamentary Groups on Global Health
May 2014

Read more here.

Early benefits and impact of medical revalidation

"Our research shows there is strong support, particularly among responsible officers and appraisers, 
for the principles and value of revalidation and its ability to improve safety, quality and effective delivery of care for patients."

The early benefits and impact of medical revalidation: report on research findings in year one
Revalidation Support Team
NHS England
March 2014

Read more here.

Involving patients in setting priorities for healthcare improvement

"Patient involvement can change priorities driving healthcare improvement at the population level."

Involving patients in setting priorities for healthcare improvement: a cluster randomized trial
A Boivin, P Lehoux, R Lacombe, J Burgers, R Grol
Implementation Science, 2014, 9:24

Read more here.

Patient engagement in research: a systematic review

"Patient engagement in healthcare research is likely feasible in many settings. However, this engagement comes at a cost and can become tokenistic."

Patient engagement in research: a systematic review
JP Domecq, et al.
BMC Health Services Research, 2014, 14:89

Read more here.

Engaging with individual patients

"Part of the Smart Guides to Engagement series, this guide helps clinical commissioning groups (CCGs) and service providers to enable and support the engagement of individuals with healthcare services."

Smart guides to engagement: Engaging with individual patients
D Redding
NHS Networks
December 2013

Read more here.

Patient-centredness in integrated healthcare delivery systems

"If providers and payers can take into account patient needs and expectations while implementing innovative healthcare delivery systems, greater acceptance and satisfaction will be achieved."

Patient-centredness in integrated healthcare delivery systems
C Juhnke, AC Muhlbacher
International Journal of Integrated Care, 2013, 13

Read more here.

Patient-initiated questions: how can doctors encourage them and improve the consultation process?

"This study highlights the importance of careful explanation of diagnostic evidence as a factor contributing to increased patient involvement."

Patient-initiated questions: how can doctors encourage them and improve the consultation process? A qualitative study
GM Murtagh, L Furber, AL Thomas
BMJ Open, 2013, 3:e003112

Read more here.

Journey into the world of patient experience

"Communication between provider and patient, and between providers, was a significant theme. People wanted to be dealt with directly and clearly, and they wanted to be assured that their multiple providers were talking to each other directly and clearly too."

Journey into the world of patient experience: lessons learned and projects underway
C Fooks
The Change Foundation
September 2013

Read more here.

A National Health Service for patients

"This paper proposes that Patient-led Commissioning Groups (PCGs) be allowed to set up alongside existing Clinical Commissioning Groups, in order to establish the accountability of the NHS to patients and the public."

A National Health Service for patients
A Howes
Civitas
September 2013

Read more here.

Transforming participation in health and care

"This guide will help clinical commissioning groups (CCGs) and other commissioners of health and care services to involve:

• patients and carers in decisions relating to care and treatment
• the public in commissioning processes and decisions."

Transforming participation in health and care
NHS England
September 2013

Read more here.

Read a summary from the Commissioning Elf here.

The NHS belongs to the people

"Better management by patients will mean fewer hospital visits and lower costs to the NHS overall."

The NHS belongs to the people
NHS England
July 2013

Read more here.

Involving people in safety

"On 1 May 2013 the Health Foundation hosted a roundtable event to explore how the public, patients, their families and carers can be involved in improving patient safety. People with expertise and personal experience of involvement in patient safety came together to share their knowledge and learning in order to build understanding in this area, and to recommend some practical next steps."

Involving people in safety: a summary of learning from a Health Foundation roundtable
The Health Foundation
June 2013

Read more here.

Putting patients at the centre of care

"Technology brings enormous benefits to healthcare, but as medicine becomes increasingly high-tech it becomes more daunting, so the need for the ‘human touch’ increases to compensate."

Won't you please, please help me?
NHS Confederation Briefing - issue 264
June 2013

Read more here.