Collective intelligence in patient organisations

"By inputting environmental or clinical data, mapping territories, discussing and voting, coding and writing, citizens can contribute their knowledge and ideas to data collection tasks, analysis and public debates."

Collective intelligence in patient organisations
L Nicholas, S Broadbent
Nesta
July 2015

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Assessing the real-world data policy landscape for health and healthcare in Europe

"Real-world data (RWD) is an umbrella term for different types of data that are not collected in conventional randomised controlled trials. In the healthcare sector, RWD can be obtained from many sources and includes patient data, data from clinicians, hospital data, data from payers and social data."

Assessing the real-world data policy landscape for health and healthcare in Europe
C Miani, E Robin, V Horvath, C Manville, J Cave, J Chataway
RAND Europe
2014

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Delivering major improvements in dementia care and research by 2015

"The NHS routinely collects data on patients as they receive care, which is a rich source of information about how disease and treatments work. The information collected includes data on biomarkers, diagnosis, treatment and clinical outcomes. This information is vital to understanding how the NHS and Social Care system can improve outcomes for patients, yet it remains a relatively untapped resource."

The Prime Minister's Challenge on dementia: Delivering major improvements in dementia care and research by 2015: annual report of progress
Department of Health
May 2013

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