Patients as partners

"More collaborative relationships among health and care professionals, patients, service users, carers and communities are essential for the future of the NHS, but what helps to build effective relationships? This guide stems from an evolving body of the Fund's work focused on exploring and supporting shared leadership. This work is reinforced by a growing consensus that health services, agencies, patients and communities need to work together more – and differently."

Patients as partners: Building collaborative relationships among professionals, patients, carers and communities
B Seale
The King's Fund
July 2016

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Researching organizational culture during health service redesign and change

"This paper makes a methodological contribution to the study of culture in health care organizations."

Patients-people-place: developing a framework for researching organizational culture during health service redesign and change
NK Gale, J Shapiro, HST McLeod, S Redwood, A Hewison
Implementation Science, 2014, 9:106

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Use of decision and communication aids in orthopaedic surgery

"Decision and communication aids can be effective tools for incorporating patients preferences and values into preference-sensitive decisions in orthopaedics."

Patient, surgeon, and healthcare purchaser views on the use of decision and communication aids in orthopaedic surgery: a mixed methods study
KJ Bozic, et al.
BMC Health Services Research, 2014, 14:366

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Rethinking the patient

"Burden of Treatment Theory is a structural model that focuses on the work that patients and their networks do. It thus helps us understand variations in healthcare utilization and adherence in different healthcare settings and clinical contexts."

Rethinking the patient: Using Burden of Treatment Theory to understand the changing dynamics of illness
CR May, et al.
BMC Health Services Research, 2014, 14:281

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Responding to service user involvement in mental health services

"The background to this report is the increasing policy emphasis on user involvement in health service planning and delivery, specifically in mental health, and theoretical frameworks concerned with organisational change and new social movements."

How do managers and leaders in the National Health Service and social care respond to service user involvement in mental health services in both its traditional and emergent forms? The ENSUE study
D Rose, M Barnes, M Crawford, E Omeni, D MacDonald, A Wilson
National Institute for Health Research
Health Services and Delivery Research, 2014, 2(10)

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Patients' right to choose any clinically appropriate provider

"This document sets out interim guidance to help commissioners, GPs and providers implement the new (1 April 2014) legal right for patients to choose any clinically appropriate provider of mental health services upon referral for a patient’s first outpatient appointment."

Interim guidance: Implementing patients' right to choose any clinically appropriate provider of mental health services
Publications Gateway Reference: 01594
NHS England
May 2014

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Transforming primary care

"Transforming primary care is the next step towards safe, personalised proactive out-of-hospital care for all."

Transforming primary care: safe, proactive, personalised care for those who need it most
Department of Health, NHS England
April 2014

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Interventions to improve cultural competency in healthcare

"This review of reviews indicates that there is some evidence that interventions to improve cultural competency can improve patient/client health outcomes."

Interventions to improve cultural competency in healthcare: a systematic review of reviews
M Truong, Y Paradies, N Priest
BMC Health Services Research, 2014, 14:99

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A review of the NHS hospitals complaints system putting patients back in the picture

"This Review was instigated by the Prime Minister to consider the handling of concerns and complaints in NHS hospital care in England."

A review of the NHS hospitals complaints system putting patients back in the picture
A Clwyd, T Hart
HM Government
October 2013

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Identifying risks and monitoring safety: the role of patients and citizens

"The paper discusses opportunities for patients, their families and carers, as well as the wider public, to become part of an integrated system for ensuring the safety of care."

Identifying risks and monitoring safety: the role of patients and citizens
J O'Hara, R Isden
The Health Foundation
October 2013

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Barriers and facilitators to implement shared decision making in multidisciplinary sciatica care

This paper identified new barriers and facilitators for shared decision-making in the multidisciplinary care of sciatica and proposes that an effective implementation of SDM in a multidisciplinary setting should focus on these.

Barriers and facilitators to implement shared decision making in multidisciplinary sciatica care: a qualitative study
SN Hofstede, PJ de Mheen, MM Wentink, AM Stiggelbout, CLA Vleggeert-Lankamp, TPM Vlieland, L van Bodegom-Vos
Implementation Science, 2013, 8:95

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Exploring the impact of caring on people's lives

"Shares the personal accounts of carers as they discuss the realities of caring for a family member or friend."

Prepared to care? Exploring the impact of caring on people's lives
Carers Week
June 2013

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Measuring patient experience

"This evidence scan describes approaches to measuring patient and carer experiences of healthcare."

Measuring patient experience: Evidence Scan 18
The Evidence Centre
The Health Foundation
June 2013

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Patient and carer experience of obtaining medication for chronic conditions

"This paper presents findings from England of a qualitative study and survey of patients and their carers' experiences of community and primary care based services for physical chronic diseases."

Patient and carer experience of obtaining regular prescribed medication for chronic disease in the English National Health Service: a qualitative study
PM Wilson, N Kataria, E McNeilly
BMC Health Services Research, 2013, 13:192

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Patient online: the road map

"Patient Online describes access by patients to online services (booking and cancelling of appointments, ordering of repeat prescriptions), online communication with the practice and online records."

Patient online: the road map
The Royal College of General Practitioners
March 2013

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The engagement cycle

This resource has been created for commissioners of health services, to help them engage with patients and the public throughout the commissioning process.

Find out more here.

A pilot qualitative study to explore stakeholder opinions regarding prescribing quality indicators

"Prescribing quality indicators are considered to be an important tool for assessing quality of provided diabetes care by all participants, although the preferences for specific types of indicators may differ by stakeholder depending on their user aim."


A pilot qualitative study to explore stakeholder opinions regarding prescribing quality indicators
L Martirosyan, J Markhorst, P Denig, FM Haaijer-Ruskamp, J Braspenning
BMC Health Services Research, 2012, 12:191


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Report on the effect of the NHS Constitution

"This report seeks to clarify the effect of the NHS Constitution on those who use NHS services and who work in the NHS."


Report on the effect of the NHS Constitution
Department of Health
July 2012


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Continuity of care for older hospital patients

"This exploratory paper draws attention to an overlooked but important topic: the contribution that continuity of care makes to the quality of care experienced in hospital by patients with multiple health problems aged 70 years and older, and also how it affects the experience of the people closest to them."

Continuity of care for older hospital patients: a call for action
J Cornwell, R Levenson, L Sonola, E Potellakhoff
The King's Fund
March 2012

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Beyond consultation: a guide for health commissioners

"This guide suggests different and practical ways for health commissioners to encourage real engagement between service users and staff so that health services can adequately address the needs of seldom-heard groups."

Beyond consultation: a guide for health commissioners: How staff and service users can work together to improve health services
R Vincent, C Miskelly
Panos London and Naz Project
March 2012

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